When a mother and baby have a minor blood group incompatibility the baby can have a resulting condition called hemolytic disease of the fetus and newborn (HDFN).
Our mission is to provide advocacy and support to those affected by maternal alloimmunization and its comorbid condition, hemolytic disease of the fetus and newborn. Maternal Alloimmunization Support aims to prevent stillbirth and neonatal mortality and morbidity caused by HDFN. We intend to provide patient support through education and have the intent to aid in the improvement of healthcare practices for the conditions.
Who We Are
We are a fully patient run not for profit organization serving the women and families who are affected by maternal alloimmunization and hemolytic disease of the fetus and newborn.
All members of our organization have been directly affected by maternal alloimmunization and its resulting HDFN. We feel very strongly in our desire to represent and support those also affected by this rare condition.
What we Do
We currently support patients and their families with emotional support and education about the condition. We empower our families to be advocates for their healthcare as we firmly believe it is an essential part of a positive outcome.
We have increased public awareness and patient and provider outreach through our social media channels and our website.
We support medical research and advancements in the treatment and prevention of HDFN.