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News & Stories

Explore stories, updates, and insights from families, professionals, and advocates working to improve care for maternal alloimmunization and HDFN.

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Brooke’s Story (Anti-D, Anti-C, Anti-E)

I lost my first baby, Kayden, to alloimmunization in 2011. She was stillborn at 31 weeks after an emergency C-section. In the years that followed, I went on to have two successful pregnancies in 2013 and 2014, though neither came without complications or constant monitoring. Today, my son Carter is 13 and my daughter Avery is 11.

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Sara’s Story (Anti-D and Anti-Kell)

My name is Sara from East Tennessee and at 26 weeks pregnant with my first baby I found out I had Anti-D antibodies. It was the appointment before I would receive the RhoGam shot actually. And I want to say they still gave it to me, not knowing at that point it had already been too late. How did I get sensitized? It’s a mystery that I have been pushing through my head every now and again for over 10 years.

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Nicki’s Story (Anti-E, Anti-c)

My name is Nicki and I live in a small town in Sweden with my 9 month old baby girl Leah, my boyfriend and our two cats. I got pregnant when I was 24 years old, it started with quite an easy pregnancy and it was filled with excitement and joy. At our first doctor visit they took bloodsamples as routine and in the next visit we where told that I had an alloimmunization to big E. We got a really short pamphlet and was told I had to take more blood samples once a month.

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The Shafi Family (Anti-D)

I’ve always been a planner. Some might even say a perfectionist. Any choice is meticulously researched and cross referenced. My first husband said I missed my calling as a lawyer. My second clarified: “presector”. We find ourselves here in 2014. I researched my way, at last, into a healthy, stable, happy marriage. Thus commenced an unloading of my years of natural birth research onto my poor unsuspecting Kenyan husband.

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Jenna’s Story

I recently went through my first alloimmunised pregnancy and now 5 weeks postpartum. I was high risk, early delivery due to risking mom and titers and bubs spent 2 weeks in NICU and special care. I had little c and big E antibodies. I also live in Australia, where I’ve hardly heard of this condition.

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Jessica’s Story (Anti-c)

Our journey began in the summer of 2003 when we were expecting our fourth child. My first prenatal blood work came back showing I had antibodies to the little c antigen. We learned my husband carries two copies of the antigen so we knew the baby would definitely be affected by my antibodies.

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